September 17, 2026 – Evening

Each time I get treatment I get an updated appointment card that lets me know when my next appointments are.  The chemo protocol that I am on now is a 3 week cycle.  That means during 21 days I have treatment on day 1, day 8 and then skip day 15 and the cycle is complete.  Following this cycle I was expecting to have my next treatment on September 30th.  This card says October 7th, so I am a bit confused.  I call the line for Dr. Johal’s secretary and so very thankfully she answers.  I need to note her name because she is phenomenal!!  It is not always her who answers or responds to voicemail, but I recognize her voice and know that she will look after me.  I explain my confusion and she reads the note that says “patient will be away between September 30th and October 2nd”  Aha!  The marble drops.  I had originally planned a trip to Ucluelet with Lindsey and then Dana and Aidan for that time.  Many things have changed since and I have had to cancel that booking.  Anyway, the secretary took care of the blip in schedule and had it adjusted to allow for my time away.  There are so many things going on that I had completely overlooked this.  Phew, glad I called the real superhero!!  She is going to go back to the  chemo schedulers and hopefully get the date changed back to September 30th and October 7th.  Then I can use my port/bloodwork procedure documented yesterday to get those appointments in the queue too.

The superhero called me back, her name is Ish.  She got me back on the right track!!

I had a visit from a former co-worker and friend who has mobility equipment that her Mom used.  She brought me a wheelchair and a smaller walker.  The wheelchair is a bit large, but I think I will try to keep it in my car and when I have Alex or Adam with me, they can get it in and out of the car for me.  We will give it a trial anyway. 

My pain has been tolerable today.  I have only taken the pain meds once this morning. 

Tomorrow I have a radiation oncology appointment at 8:15.  Michael will pick me before and go with me.  I am expecting to have radiation appointments next week, but that is just a guess.  Tomorrow will shed more light on things.

2 thoughts on “September 17, 2026 – Evening”

Leave a Reply

Your email address will not be published. Required fields are marked *